Awareness

How can we be a part of the World Down Syndrome Day

mazeeya

Jun 24, 2023

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Introduction:

Imagine a world where every individual, regardless of their abilities, is embraced and celebrated. World Down Syndrome Day reminds us of the power of inclusion and the beauty of diversity. It is observed annually on March 21st, and is a day dedicated to raising awareness about Down syndrome and promoting inclusion and understanding for individuals with Down syndrome. This day has been officially recognized by the United Nations since 2012, and is celebrated around the world by individuals, families, organizations, and communities. Down syndrome is a genetic condition that occurs when there is an extra copy of chromosome 21. This extra genetic material affects development, causing physical and intellectual disabilities. Individuals with Down syndrome often have distinct physical features, such as a flat facial profile, upward slanting eyes, and a small nose and mouth. They may also have heart defects, hearing problems, and other health issues. Despite the challenges that come with Down Syndrome, individuals with this condition are capable of leading fulfilling lives. With appropriate support, they can thrive in school, work, and social settings. They have unique perspectives, talents, and strengths that make them valuable members of society. However, many people with Down Syndrome still face barriers to full inclusion in society. They may experience discrimination, limited access to education and employment opportunities, and a lack of understanding from others.
Hence on this day, we are reminded of the importance of promoting inclusion and celebrating the diversity and beauty of individuals with Down Syndrome, and we advocate for their rights and inclusion in society. But World Down Syndrome Day is more than just a day of celebration. It is a call to action. This day is an opportunity to educate others about Down syndrome, challenge stereotypes and stigma, and advocate for the rights and needs of individuals with this condition. So what are we doing about it?
There are certain support systems in Sri Lanka such as:

Down Syndrome Association of Sri Lanka (DSASL): This is a non-profit organization that provides support, resources, and advocacy for individuals with Down Syndrome and their families. The DSASL provides various services, such as education, therapy, and counseling, and also organizes events and activities to raise awareness and promote inclusion. In addition to that there are several special education schools in Sri Lanka that cater to the needs of children with Down Syndrome and other disabilities. These schools provide specialized education and therapy services, as well as a supportive and inclusive environment. Also the Sri Lankan government has taken steps to support individuals with disabilities, including Down Syndrome, through initiatives such as the Disability Rights Act and the National Council for Persons with Disabilities.

Challenges faced by them:
Despite efforts to promote inclusion and acceptance, individuals with Down Syndrome in Sri Lanka still face stigma and discrimination. This can make it difficult for them to access education, healthcare, and employment opportunities. While there are some resources and support systems available, they are often limited in scope and availability. This can make it challenging for families to access the services and support they need. Many families of individuals with Down Syndrome in Sri Lanka face financial challenges in accessing the resources and support they need. This can limit their options for education, therapy, and other services. Moreover there is still a lack of awareness and understanding about Down Syndrome in Sri Lanka, which can make it difficult for individuals and families to access support and resources. There is a need for more education and awareness-raising initiatives to promote understanding and acceptance.


how can we be a part of it:

how can we contribute in making a better place so that everyone can thrive. Here are some ways we can support to promote inclusion and betterment individually or by joining hands with the government or organizations working towards it. Awareness-raising campaigns: Many organizations and advocacy groups use International Down Syndrome Day as an opportunity to raise awareness about the condition and promote understanding and acceptance. They may share stories of individuals with Down syndrome and their families, dispel myths and stereotypes, and educate the public about the challenges and joys of living with this condition.
Joining Advocacy and policy work: They work to advocate for policies and laws that protect the rights of individuals with disabilities. They may work to promote access to education, employment, healthcare, and other services, and challenge discrimination and stigma.
Support networks: Individuals with Down Syndrome and their families often benefit from the support of others who understand their experiences. Many organizations and support groups exist to provide resources, information, and community for individuals with Down Syndrome and their loved ones. This may include volunteering with organizations that provide services and support, or simply being a friend and ally to individuals with Down Syndrome.
Conclusion:

In working towards World Down Syndrome Day in Sri Lanka, it is important to address challenges faced and advocate for the needs and rights of individuals with Down syndrome and their families. By promoting awareness, acceptance, and inclusion, we can create a more supportive and inclusive society for all.

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